Official Diagnosis and Surgery

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Well, I got the call today....


I knew it was important when they called Mrs. Zebra first, and conferenced me in. Kind of like when you are called into the principal's office and your mom is standing there when you walk in the door... yea, that kind of stomach turning nervousness... but I knew what he was going to say. Why so nervous...

I went to the back and Dr. Ludlum got on the line.

His pauses as SOOOO long...

He starts off by asking me how I felt toward the end of the week. Truth be told, I don't remember. Its been a week, and I didn't sleep that week... but I remember it wasn't great, and I was up late against my will, red face, stripes, etc. Apparently, my tumor turned off about Thursday. My dex reaction was high normal. My UFCs from Monday through Wed were 150, 180, 190 (take that OLD PCP DOC!) but my IPSS didnt show anything. Except..

long pause


The tech said he wouldn't trust the numbers if they came out normal. He said my left sinus cavity is way to large, and will throw the numbers off, lowering them. And it did. Made them normal.
Long pause


Then he said that the UFCs should be enough to officially diagnose me. His exact words were, "You have The Cushing's" And my world stopped. My journey for a cure only really started this year and already I have a diagnosis. It is elating, but t the same time I feel guilty that so many others fight for years for it. But he wasn't done. He said he needs a bit more proof. My CT of lungs and abdomen look good, and he wants another Dex test, but wants an Octreotide scan to show any tumors. Kind of proving that it isn't anywhere else!
Now the problem is financing. Our savings is blown, tax return gone. I will get a bit of cash when we go to the convention in early June from our hotel mates, but we might need more. And... Mrs. Zebra cant come that first week. If she did, she would miss surgery because she would have to go back to work. And the Inn, while less expensive than a hotel, costs us more in rent for two weeks. So we ask for prayers and if you have any donations you would like to give, I will be attaching a paypal button on the blog. Its easy and you can use a credit card or checking account. Anything is appreciated.

So, here we go again....

Posted via email from The weary Zebra: Zebra Snippets

Loosing More Hair

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The misses found this last night, because she loves gazing starry eyed into my eyes, that I am loosing more hair. This time, it is my eyebrows.
My hair is patchy, so now I wear a hat. And she started loosing her eyebrows a few years back. Thats she she started her PCOS symptoms that no treatment is helping (hmmm, wonder why?) and the doc then said it was her thyroid which no meds are touching either. So at this rate, I will be completely hairless by the time I am 30.
Thanks Cushing's. I didnt need any self confidence...


Brandon Ivey
Post Production
Capture the Market
214.905.4331 ext.2719
brandon.ivey@capturethemarket.com

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The Zebra Wife has something to say!

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Here is the misses and her comment on Camp Cushie. Enjoy!

The Weary Zebra

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Cushie Camp Day 5

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Here is the conclusion of my trip to Dr. Ludlum's Camp Cushie. I do have one more video from that week to post in relation to Cushing's, but I will have to do that tonight/tomorrow. For now, here is Day 5. S

The Weary Zebra



Day TWO!

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I must have been tired when all this was going on because HERE is day two! I was out of it for a few days. I feel like I am finally recovering... still bruised pretty bad though. Sorry for the confusion, but here is day two!

The Weary Zebra

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Camp Cushie Day Three and Four

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Here are the video updates for Day three and four. Hopefully now, you know how rough this week is. I dont even have a Day Two video anymore. Im still looking for it...I lost a day of updates...

Camp Cushie: Day Two

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For some reason, I cant find the video I did for Day Two. I will look for it again, but I remember doing it... Does anyone remember watching it...? The travel lag and the Cushing's is not playing with my head well... So instead, here are some pics of our "accommodations". Dont except much!
The Weary Zebra